van Eeden AE, van Hoeken D, Hoek HW. Incidence, prevalence and mortality of anorexia nervosa and bulimia nervosa. Curr Opin Psychiatry. 2021;34:515–24. https://doi.org/10.1097/YCO.0000000000000739
Google Scholar
Keski-Rahkonen A, Mustelin L. Epidemiology of eating disorders in Europe: prevalence, incidence, comorbidity, course, consequences, and risk factors. Curr Opin Psychiatry. 2016;29:340–5. https://doi.org/10.1097/YCO.0000000000000278
Google Scholar
World Health Organization. International statistical classification of diseases and related health problems. 10th ed. Geneva, Switzerland: World Health Organization; 2016.
Westmoreland P, Krantz MJ, Mehler PS. Medical complications of anorexia nervosa and bulimia. Am J Med. 2016;129:30–7. https://doi.org/10.1016/j.amjmed.2015.06.031
Google Scholar
Zeeck A, Herpertz-Dahlmann B, Friederich H-C, Brockmeyer T, Resmark G, Hagenah U, et al. Psychotherapeutic treatment for anorexia nervosa: a systematic review and network meta-analysis. Front Psychiatry. 2018. https://doi.org/10.3389/fpsyt.2018.00158
Google Scholar
Steinhausen H-C. The outcome of Anorexia Nervosa in the 20th century. Am J Psychiatry. 2002;159:1284–93. https://doi.org/10.1176/appi.ajp.159.8.1284
Google Scholar
Khalsa SS, Portnoff LC, McCurdy-McKinnon D, Feusner JD. What happens after treatment? A systematic review of relapse, remission, and recovery in anorexia nervosa. J Eat Disord. 2017. https://doi.org/10.1186/s40337-017-0145-3
Google Scholar
Gregertsen EC, Mandy W, Kanakam N, Armstrong S, Serpell L. Pre-treatment patient characteristics as predictors of drop-out and treatment outcome in individual and family therapy for adolescents and adults with anorexia nervosa: a systematic review and meta-analysis. Psychiatry Res. 2019;271:484–501. https://doi.org/10.1016/j.psychres.2018.11.068
Google Scholar
Zipfel S, Giel KE, Bulik CM, Hay PJ, Schmidt U. Anorexia nervosa: aetiology, assessment, and treatment. Lancet Psychiatry. 2015;2:1099–111. https://doi.org/10.1016/S2215-0366(15)00356-9
Google Scholar
Keshaviah A, Edkins K, Hastings ER, Krishna M, Franko DL, Herzog DB, et al. Re-examining premature mortality in anorexia nervosa: a meta-analysis redux. Compr Psychiatry. 2014;55:1773–84. https://doi.org/10.1016/j.comppsych.2014.07.017
Google Scholar
Clausen L. Perspectives on Involuntary Treatment of Anorexia Nervosa. Front Psychiatry. 2020. https://doi.org/10.3389/fpsyt.2020.533288
Google Scholar
Guarda AS, Pinto AM, Coughlin JW, Hussain S, Haug NA, Heinberg LJ. Perceived coercion and change in perceived need for admission in patients hospitalized for eating disorders. Am J Psychiatry. 2007;164:108–14. https://doi.org/10.1176/ajp.2007.164.1.108
Google Scholar
Hillen S, Dempfle A, Seitz J, Herpertz-Dahlmann B, Bühren K. Motivation to change and perceptions of the admission process with respect to outcome in adolescent anorexia nervosa. BMC Psychiatry. 2015. https://doi.org/10.1186/s12888-015-0516-8
Google Scholar
Schreyer CC, Coughlin JW, Makhzoumi SH, Redgrave GW, Hansen JL, Guarda AS. Perceived coercion in inpatients with Anorexia nervosa: associations with illness severity and hospital course. Int J Eat Dis. 2016;49:407–12. https://doi.org/10.1002/eat.22476
Google Scholar
Graham MR, Tierney S, Chisholm A, Fox JRE. The lived experience of working with people with eating disorders: a meta-ethnography. Int J Eat Dis. 2020;53:422–41. https://doi.org/10.1002/eat.23215
Google Scholar
Matusek JA, Wright MO. Ethical dilemmas in treating clients with eating disorders: a review and application of an integrative ethical decision-making model. Eur Eat Disord Rev. 2010;18:434–52.
Google Scholar
Beauchamp TL, Childress JF. Principles of Biomedical Ethics. 8th ed. New York: Oxford University Press; 2019.
Geppert CMA. Futility in Chronic Anorexia Nervosa: a Concept whose time has not yet come. Am J Bioeth. 2015;15:34–43. https://doi.org/10.1080/15265161.2015.1039720
Google Scholar
Dobrescu SR, Dinkler L, Gillberg C, Råstam M, Gillberg C, Wentz E. Anorexia nervosa: 30-year outcome. Br J Psychiatry. 2020;216:97–104. https://doi.org/10.1192/bjp.2019.113
Google Scholar
Eddy KT, Tabri N, Thomas JJ, Murray HB, Keshaviah A, Hastings E, et al. Recovery from Anorexia Nervosa and Bulimia Nervosa at 22-Year Follow-Up. J Clin Psychiatry. 2017;78:184–9. https://doi.org/10.4088/JCP.15m10393
Google Scholar
Löwe B, Zipfel S, Buchholz C, Dupont Y, Reas DL, Herzog W. Long-term outcome of anorexia nervosa in a prospective 21-year follow-up study. Psychol Med. 2001;31:881–90. https://doi.org/10.1017/s003329170100407x
Google Scholar
Charland LC. Ethical and conceptual issues in eating disorders. Curr Opin Psychiatry. 2013;26:562–5.
Google Scholar
Giordano S. Anorexia nervosa: a case for exceptionalism in ethical decision making. Philos Psychiatr Psychol. 2019;26:315–31. https://doi.org/10.1353/ppp.2019.0047
Google Scholar
Dworkin G. In: Zalta EN, editor. Paternalism. The Stanford Encyclopedia of Philosophy; 2020.
McKinney C. Is resistance (N)ever futile? A response to futility in Chronic Anorexia Nervosa: a Concept whose time has not yet come by Cynthia Geppert. Am J Bioeth. 2015;15:53–4. https://doi.org/10.1080/15265161.2015.1042991
Google Scholar
Giordano S. Anorexia and refusal of life-saving treatment: the Moral Place of competence, suffering, and the family. Philos Psychiatr Psychol. 2010;17:143–54. https://doi.org/10.1353/ppp.0.0286
Google Scholar
Westermair AL, Buchman DZ, Levitt S, Trachsel M. Palliative Psychiatry for severe and Enduring Anorexia Nervosa includes but goes beyond harm reduction. Am J Bioeth. 2021;21:60–2. https://doi.org/10.1080/15265161.2021.1926594
Google Scholar
Draper H. Anorexia nervosa and respecting a refusal of life-prolonging therapy: a limited justification. Bioethics. 2000;14:120–33.
Google Scholar
Yager J. Managing patients with severe and Enduring Anorexia Nervosa: when is Enough. Enough? J Nerv Ment Dis. 2020;208:277–82. https://doi.org/10.1097/NMD.0000000000001124
Google Scholar
Gans M, Gunn WB Jr. End stage anorexia: criteria for competence to refuse treatment. Int J Law Psychiatry. 2003;26:677–95. https://doi.org/10.1016/j.ijlp.2003.09.004
Google Scholar
Campbell AT, Aulisio MP. The stigma of mental illness: end stage anorexia and treatment refusal. Int J Eat Dis. 2012;45:627–34. https://doi.org/10.1002/eat.22002
Google Scholar
Radbruch L, de Lima L, Knaul F, Wenk R, Ali Z, Bhatnaghar S, et al. Redefining Palliative Care-A New Consensus-based definition. J Pain Symptom Manage. 2020;60:P754–764. https://doi.org/10.1016/j.jpainsymman.2020.04.027
Google Scholar
Schüttengruber G, Großschädl F, Lohrmann C. A Consensus definition of end of life from an International and Interdisciplinary Perspective: a Delphi Panel Study. J Palliat Med. 2022;25:1677–85. https://doi.org/10.1089/jpm.2022.0030
Google Scholar
Westermair AL, Buchman DZ, Levitt S, Perrar KM, Trachsel M. Palliative psychiatry in a narrow and in a broad sense: a concept clarification. ANZJP. 2022;56:1535–41. https://doi.org/10.1177/00048674221114784
Google Scholar
Westermair AL, Trachsel M. Ethics of Palliative Psychiatry. In: Helmchen H, Gather J, Sartorius N, editors Ethics in Psychiatry: European Contributions; in.
Trachsel M, Wild V, Biller-Andorno N, Krones T. Compulsory treatment in Chronic Anorexia Nervosa by all means? Searching for a Middle Ground between a curative and a Palliative Approach. Am J Bioeth. 2015;15:55–6. https://doi.org/10.1080/15265161.2015.1039730
Google Scholar
Westermair AL, Perrar KM, Schweiger U. Ein Palliativer Ansatz für schwerste anorexia nervosa? [A palliative approach for severest anorexia nervosa?]. Nervenarzt. 2020;91:411–6. https://doi.org/10.1007/s00115-020-00875-3
Google Scholar
Trachsel M, Irwin SA, Biller-Andorno N, Hoff P, Riese F. Palliative psychiatry for severe persistent mental illness as a new approach to psychiatry? Definition, scope, benefits, and risks. BMC Psychiatry. 2016. https://doi.org/10.1186/s12888-016-0970-y
Google Scholar
Lopez A, Yager J, Feinstein RE. Medical futility and psychiatry: palliative care and hospice care as a last resort in the treatment of refractory anorexia nervosa. Int J Eat Dis. 2010;43:372–7. https://doi.org/10.1002/eat.20701
Google Scholar
Kelly M, Dowling M, Millar M. The search for understanding: the role of paradigms. Nurse Res. 2018;25:9–13. https://doi.org/10.7748/nr.2018.e1499
Google Scholar
Liamputtong P, Ezzy D. Qualitative research methods. 2nd ed. Oxford: Oxford University Press; 2006.
Bowen GA. Document analysis as a qualitative Research Method. Qual Res J. 2009;9:27–40. https://doi.org/10.3316/QRJ0902027
Google Scholar
Opel DJ, Wilfond BS, Brownstein D, Diekema DS, Pearlman RA. Characterisation of organisational issues in paediatric clinical ethics consultation: a qualitative study. J Med Ethics. 2009;35:477–82.
Google Scholar
Wasson K, Anderson E, Hagstrom E, McCarthy M, Parsi K, Kuczewski M. What ethical issues really arise in practice at an Academic Medical Center? A quantitative and qualitative analysis of Clinical Ethics consultations from 2008 to 2013. HEC Forum. 2016;28:217–28. https://doi.org/10.1007/s10730-015-9293-5
Google Scholar
Johnson L-M, Church CL, Metzger M, Baker JN. Ethics consultation in pediatrics: long-term experience from a pediatric oncology center. Am J Bioeth. 2015;15:3–17. https://doi.org/10.1080/15265161.2015.1021965
Google Scholar
Montaguti E, Schürmann J, Wetterauer C, Picozzi M, Reiter-Theil S. Reflecting on the reasons pros and cons coercive measures for patients in Psychiatric and somatic care: the Role of Clinical Ethics Consultation. A pilot study. Front Psychiatry. 2019. https://doi.org/10.3389/fpsyt.2019.00441
Google Scholar
Reiter-Theil S. Initiating and maintaining clinical ethics support in psychiatry. Ten tasks and challenges – and how to meet them. Clin Ethics. 2016;11:45–53. https://doi.org/10.1177/1477750916649119
Google Scholar
Reiter-Theil S, Schürmann J. The big five in 100 clinical Ethics Consultation cases. Bioethica Forum. 2016;9:60–70. https://doi.org/10.24894/bf.2016.09013
Google Scholar
Tapper EB, Vercler CJ, Cruze D, Sexson W. Ethics consultation at a large urban public teaching hospital. Mayo Clin Proc. 2010;85:433–8. https://doi.org/10.4065/mcp.2009.0324
Kuckartz U. Qualitative inhaltsanalyse [Qualitative content analysis]: Methoden, Praxis, Computer-Unterstützung [Methods, Practice, Computer Assistance]. 4th ed. Weinheim: Beltz Juventa; 2018.
Pearlman RA, Foglia MB, Fox E, Cohen JH, Chanko BL, Berkowitz KA. Ethics Consultation Quality Assessment Tool: a Novel Method for assessing the quality of Ethics Case consultations based on Written records. Am J Bioeth. 2016;16:3–14. https://doi.org/10.1080/15265161.2015.1134704
Google Scholar
Salloch S, Ritter P, Wäscher S, Vollmann J, Schildmann J. Was ist ein ethisches Problem Und Wie finde ich es? Theoretische, methodologische und forschungspraktische Fragen Der Identifikation ethischer Probleme am Beispiel Einer Empirisch-Ethischen Interventionsstudie [What is an ethical problem and how do I find it? Theoretical, methodological and practical questions to identify ethical problems in an empirical–ethical intervention study]. Ethik Med. 2016;28:267–81. https://doi.org/10.1007/s00481-016-0384-x
Google Scholar
Saunders B, Sim J, Kingstone T, Baker S, Waterfield J, Bartlam B, et al. Saturation in qualitative research: exploring its conceptualization and operationalization. Qual Quant. 2018;52:1893–907. https://doi.org/10.1007/s11135-017-0574-8
Google Scholar
O’Brien BC, Harris IB, Beckman TJ, Reed DA, Cook DA. Standards for reporting qualitative research: a synthesis of recommendations. Acad Med. 2014;89:1245–51. https://doi.org/10.1097/ACM.0000000000000388
Google Scholar
Wonderlich SA, Bulik CM, Schmidt U, Steiger H, Hoek HW. Severe and enduring anorexia nervosa: update and observations about the current clinical reality. Int J Eat Dis. 2020;53:1303–12. https://doi.org/10.1002/eat.23283
Google Scholar
Maguire S, Surgenor LJ, Le Grange D, Lacey JH, Crosby RD, Engel SG, et al. Examining a staging model for anorexia nervosa: empirical exploration of a four stage model of severity. J Eat Disord. 2017. https://doi.org/10.1186/s40337-017-0155-1
Google Scholar
Bianchi A, Stanley K, Sutandar K. The ethical defensibility of Harm Reduction and Eating disorders. Am J Bioeth. 2021;21:46–56. https://doi.org/10.1080/15265161.2020.1863509
Google Scholar
Tsiandoulas K, McSheffrey G, Fleming L, Rawal V, Fadel MP, Katzman DK, McCradden MD. Ethical tensions in the treatment of youth with severe anorexia nervosa. Lancet Child Adolesc Health. 2023;7:69–76. https://doi.org/10.1016/S2352-4642(22)00236-X
Google Scholar
Westermair AL, Weber S, Westmoreland P, Mehler PS, Elsner F, Trachsel M. Scoping review of end-of-life care for persons with anorexia nervosa. Ann Palliat Med. 2024;13:685–707. https://doi.org/10.21037/apm-23-522
Google Scholar
Westermair AL, Trachsel M. Moral intuitions about Futility as prompts for evaluating goals in Mental Health Care. AMA J Eth. 2023;25:E690–702. https://doi.org/10.1001/amajethics.2023.690
Google Scholar
Walker DC, Heiss S, Donahue JM, Brooks JM. Practitioners’ perspectives on ethical issues within the treatment of eating disorders: results from a concept mapping study. Int J Eat Dis. 2020;53:1941–51. https://doi.org/10.1002/eat.23381
Google Scholar
Kendall S. Anorexia nervosa: the diagnosis. A postmodern ethics contribution to the bioethics debate on involuntary treatment for anorexia nervosa. J Bioeth Inq. 2014;11:31–40. https://doi.org/10.1007/s11673-013-9496-x
Google Scholar
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